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Just Diagnosed - Next
Step
Become informed - please use
the links from this page.
Get in touch with fellow sufferers, their experience can make
yours easier.
Come along to the next meeting of the West Midlands Group
Ask questions of the medical professionals with whom you deal
and don't necessarily accept the first answer.
Seek genetic counselling so that you can grasp the full
implications for yourself and your family
Join the the
UK
Haemochromatosis Society
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West Midlands Support
Group The
Haemochromatosis West Midlands Support Group has been set up to
help fill a gap in the provision of care to those with the
illness within this area. We hope to:
act as a focus of
support for those sufferers and their carers;
promote awareness generally and importantly among medical
professionals such as GPs;
act as a forum which will allow for the development of better
understanding between the medical establishment and those
suffering with this complex illness;
act in conjunction with other groups locally, nationally and
internationally to bring about better understanding and care in
relation to Haemochromatosis.
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Haemochromatosis Society UK  The
UK Society operates a help line for people with concerns about the
condition and its treatment;
distributes an informative leaflet, handbook and a quarterly
newsletter to members;
puts members in contact with other members so as to share their
experiences;
maintains a website supplying up to date information about
Haemochromatosis and useful links to other sites;
promotes greater knowledge of Haemochromatosis both among
doctors and the general public;
supports research into Haemochromatosis and its treatment. |
